Fibromyalgia Go

Vegetarian and prescription drugs??? Are there any vegetarian treatments for fibromyalgia?

Fibromyalgia Support — Thu, 12 Nov 2009 02:36:12 +0000

So, I am a vegetarian, have been a long time, (and am recently trying to transition into becoming a vegan). So, my rheumatologist presrcibes me lyrica, to treat fibromyalgia. In the meantime, they are doing bloodwork to check for autoimmune problems….anyway, I tell them that the lyrica, is not vegetarian (gelatin). And she says some of my other meds aren’t either. The only other I take is topamax (for migraines) which she says has stearic acid, which isn’t vegetarian either. Which I looked up and will have to stop taking this, stearic acid, that is.
So, she says that the meds for fibromyalgia are not going to be vegetarian, and my alternative is pilates, yoga, etc. Which I do, but not very often. Are there NO vegetarian or vegan treatments for fibromyalgia, or headaches/migraines?? Really?

I was recently diagnosed with Fibromyalgia and CFIDS, how do you deal?

Fibromyalgia Support — Wed, 11 Nov 2009 18:48:32 +0000

Fibromyalgia is a nerve disorder that causes extreme pain in the muscles, joints, tendons, and soft tissues. CFIDS stands for Chronic Fatigue Immuno Deficiency Syndrome. This basically depletes my immune system to an unhealthy level and knocks me off my feet for days to weeks at a time. The doctor said its the worse case he’s ever seen, and I have an appointment to see the head of rheumatology in January.

My question to you is this: How do you deal with a diagnosis that means that you will be in constant severe pain for the rest of your life? How do you face the day knowing how much pain and exhaustion it will cause you? Most of all, how do you maintain a normal life?

Honestly, I’m scared to death. I’ve only just turned 19 and have huge goals and aspirations that are being obstructed by this condition which has plagued me since the start of high school. I’m now a college student, but its been getting worse and worse to the point where I’m practically useless a great deal of the time.

It’s affected my family, my boyfriend, my classwork, my job, pretty much everything in my life. My mind is more capable than my body, and that drives me absolutely insane. Sometimes my boyfriend can’t even touch me because the pressure hurts too much on my skin. How will I be able to deal with kids and a job that requires me to be present all the time?

Please offer any advice you can, I know that the situation is kind of specific…

what do i expect when i see specialist regarding fibromyalgia?

Fibromyalgia Support — Tue, 10 Nov 2009 19:48:06 +0000

My Doctor has contacted me regarding the referral to a rheumatologist (sorry for spelling!) but not seeing him till wednesday - not sure about what tests, checks and questions the specialist will ask me - any information would be greatfully recieved

Is fibromyalgia difficult to diagnose, and are doctors reluctant to do so?

Fibromyalgia Support — Tue, 10 Nov 2009 07:52:19 +0000

I have been experiencing many symptoms of pain since summer 2006 (widespread chronic pain, soft tissue pain, tenderness, fatigue, weakness, achiness, soreness, trouble sleeping, concentration problems, brain fog migraines, and muscle spasms). I already have cerebral palsy on my left side, and epilepsy. A friend with fibromyalgia suggested that I see a doctor because she suspects I also have fibromyalgia. When I did see the doctor, she prescribed me Cymbalta, had my blood taken, and told me it was "non-specific widespread chronic pain". She was reluctant to say anything about fibro because "it could be anything." The blood tests are perfectly fine. The Cymbalta helps somewhat. My friend still feels that it couldn’t be anything else. My gut instinct, my intuition, also says it is fibro. But I don’t want to seem hypochondriac, especially since I have several other diagnosed disorders. I am just concerned that the doctor will continue to be reluctant to diagnose.

Am I going crazy or am I sick?

Fibromyalgia Support — Mon, 09 Nov 2009 16:56:02 +0000

I sleep an average of 12 hours and I wake up groggy, but I’m rarely able to go to sleep at a decent time. Then, while I’m awake I’ll sometime get incredible urges to clean, or cook. I have fibromyalgia, which results in the worst pain on some days and poor circulation that causes horrible pain in my hands and feet every morning until about 2 hrs. after I start moving. I take Ultram daily and Lortab when I feel the pain is going to be bad, and nothing else. I’m always tired, but I’m in too much pain or too busy to sleep (escaping pain). I used to be on strong narcotics all the time but I couldn’t function, but I’m still not where I want to be. Sleep meds might help, but I already get treated like a junkie for trying to get pain relief and I think this will really convince my doctors to cut me loose. Or maybe I’m losing it, which might be possible because some days I’m in pain to the point of suicide. I just want to sleep!

Why does every muscle in my body ache? (NOT b/c of working out)?

Fibromyalgia Support — Mon, 09 Nov 2009 16:56:02 +0000

I’m 22 years old and for the last week, every muscle in my body has been aching. I feel like an old man. I haven’t been working out so the muscle aches are not from that. The most pronounced aches are in my neck, mid-back (shoulder blades), calves and hands. What on earth could be causing this?
I read up on muscle aches and it said that fibromyalgia can be the cause, and since I have trouble sleeping as well as depression/anxiety, I am slightly worried that this may be the case.. has anyone else had experience with this kind of thing? It’s not terribly severe but especially in my back, it is definitely noticable and I think if it lingers for another day or two I’m going to need to see a Dr. about it because this has never happened to me before..some help, please?

Does any of you suffer from shin splints.?

Fibromyalgia Support — Mon, 09 Nov 2009 16:56:01 +0000

I have fibromyalgia, and so many medicines cause me to suffer from shin splints. I have COPD, I have found out that I can not take steroids. They cause severe shin splints.What other form of medicine is out there, and is there anything that I can do when I get this pain? I can not take advair, spariva, or asthmax…any sugestoins would be helpful.

Lyrica with Methadone for extreme chronic pain?

Fibromyalgia Support — Mon, 09 Nov 2009 16:55:59 +0000

Hey guys… i have severe chonic pain from a number of issues. I have fibromyalgia that was caused by Lymes Disease that is now neurological because i’ve had it for so long and didnt even know it ( 3+ years). Anyway it was hard because i am only 24 yrs old, and lots of doctors don’t treat 24 yr olds seriously when they complain of extreme pain and can’t find out why. Which was wonderful.
Anyway i’ve been working with a great doctor for the past 7 months or so, and he put me on methadone. Started at 40mgs and inched it up 5mgs until i reached a comfortable dosage.. which endedup being about 100.
That was fine for a couple of months… but even DESPITE the methadone i am still in extreme pain… all the time. I can’t even walk more than a few blocks cuz i start crying and have to have a wheelchair for times when its necessary. There are literally EIGHT pages of symptoms for neurological lymes… and i have about 87%… check out the link:

http://www.anapsid.org/lyme/symptoms/

http://www.anapsid.org/lyme/symptoms/
Anyways i asked him if any medications can work WITH methadone to help further with pain ( cuz i DONT want to be put on oxycontin or percocet or anything like that…. no way), and he is now going to be putting me on Lyrica. Also, Abilify 5mgs for the severe mood swings and anxiety.
Does anyone have any experience with this, and can maybe tell me a little bit more? Will it work? What side effects should i expect at first? Any information would be helpful… thanks…

******IMPORTANT: This is an information site. NOT your blog, NOT an opinion site or a forum chat group… Question and Answer. Please remember this as you are answering my question, as all negative/hateful/opinionated crap WILL be ignored. Thanks.

Too much Aspirin HAVE RINGING IN THE EARS?

Fibromyalgia Support — Mon, 09 Nov 2009 16:55:59 +0000

i take BC powders several times a day to help ease my fibromyalgia but sometimes I go overboard. I had a heart attack 9 mo. ago and aspirin is a part of my daily meds, but I take way more than recommended. Can this cause another heart attack? I take about 6 or 7 powders a cay and each contain 650mg of aspirin and 33mgs of caffeine. I know its not good but how bad is it actually?

Is there anyone on here who is 20 and has fibromyalgia?

Fibromyalgia Support — Mon, 09 Nov 2009 16:55:57 +0000

I am 20 obviously and I am dying for some advice on meds that I can try, or things that have helped any of you. I was diagnosed at 16 and since then I still havent found much that helps. I am currently taking about 12 pills ever night, different types of course, and I dont want to have to resort to getting high for the pain, and sleep, do any of you have any advice, im taking almost any advice unless you dont even know what the hell it is. I just want some relief and to get off some of my meds cause its getting insane how much i have to take now. Thanks you