8 Responses

1. Danielle_G

   March 24th, 2009 at 1:45 am

   1

   See about getting a tens unit. Usually the place you can purchase them from can help to enroll you in a program that either pays completely for the unit, or that will provide it to you at an affordable cost. I have heard wonderul things about the anti-depressant Cymbalta for those who have fibromyalgia. there are prescription assistance programs that the drug companies have that will send you the prescribed drug at a small cost. Other than that itr sounds like you are doing all that you can. I have heard that people with muscle diseases or conditions who eat diets that are very high in protein have some relief.

2. susan_e

   March 24th, 2009 at 2:14 am

   2

   nobody can live off disability.all i can tell you is my neighbor has fibromyalgia and she works around our apartment complex cleaning the pool,general maintenance because she says it helps plus she needs to supplement her disability check.shes got more energy then me but then again everybody’s different.
   from time to time she gets an epidural type pain reliever,have you ever explored that option?or holistic medicine?i wish i had a better answer for you.i’m a big believer in vitamins and traditional medicine.but do think theres alot of holistic approaches to every condition/disease.peace.keep going,don’t sit around.never give up.

3. Mfamily

   March 24th, 2009 at 5:43 am

   3

   Lyrica at 450mg and exercise is the best thing for fibromyalgia. Also request Vit D levels. Vit D deficiency is under diagnosed and can cause similar symptoms as chronic fatigue syndrome and fibromyalgia.

4. EMT_B

   March 24th, 2009 at 6:38 am

   4

   ask your doctor for neurontin (gabapentin) this has worked for me

   also a med called LYRICA has just been approved for the treatment of fibro

5. Sophiesmom

   March 24th, 2009 at 8:39 am

   5

   I have had fibro for about as long as you…Getting it while in the military i was a test dummy, or that’s what i felt like…I also have RSDS or CRPS whatever they are calling it now…I have my pain medication and that’s it…I have tried so many drugs, i go to the VA now, all is free but again Ima test dummy…I have flushed more pills down the toilet…(dont worry septic tank)
   I think the only real thing to do is what your doing, keep working, its exercise…If you can get someone to rub out the fibro balls, those knots your having, that would help…
   Try putting rice in a tube sock, heat it for 2 minutes, it helps alot…
   My worse pain is in my back…I’ve just learned different things that work for me to relax….The more busy i am the better i feel…I work as a firefighter with this and i found the cure…Adrenalin, if it wouldn’t kill you having so much it would work…Every time we got a call, i felt NO pain, it was great, till the Adrenalin wore off…

6. gypsyveg

   March 24th, 2009 at 1:56 pm

   6

   http://www.frequencyspecific.com - very successful at treating pain. I have no clue about the cost. Also drink VIVO water.

7. Jeanne_B

   March 24th, 2009 at 4:56 pm

   7

   Hey commonsensemom,
   Sometimes we need to use several drugs at the same time. But there is an over the counter medicine made just for fibromyalgia. It’s called "024 Fibromyalgia." I’ve been using it for 2 years now, and it works well. The manufacturer is "swissmedica." I have found it in several stores that have pharmacies. It was $20. There is a "wipe" form of it for about $8, it has 6 towelettes. The liquid lasts a long time. I am only on my second bottle.

   I’d like to tell you about the best fibromyalgia website I have found. It’s http://www.fmaware.com.

   They have exercise guidelines on their website that suggest that we should only be doing walking, it should be at maximum 30 minutes, 3 days a week. Perhaps you are doing too much. Unfortunately, one thing we must realize is fibromyalgia only worsens as we age. Massage therapy has to be done by someone who is expert with fibromyalgia. If the massage is any harder than a very gentle hand moving slowly across your skin, it’s too hard and can make fibromyalgia worse. It’s also necessary to find an acupuncturist who knows fibromyalgia well, too. It has to be done in the "deep tissue" method. That’s the one kind of acupuncture that can hurt, but when properly done, it does work. You must have at least 30 treatments for it to begin to work for longer than a week. You should have it done daily if at all possible. That is much more effective. I have had both of those and I can say they do work.