27 Apr
Posted by Fibromyalgia Support as Fibromyalgia-Tests
I am 22 years old and have been suffering from chronic muscle, joint, and tendon pain since February of 2005. My symptoms are as follows:
–shooting pain from my elbows to my figures ( feels like funny bone constantly being rubbed)
–tight muscles in my back and neck, puts painful pressure on my spine .
–muscles around along my spine are like tough strings, you can actually pluck, and make cracking sounds
–sever pain in my wrist and finger joints that causes inconvenience and limitations. can not turn door knobs, open bottles, write long periods of time, drive etc.
–wake up frequently through out the night
–feel sore and stiff in the mronings, as if just completed an intense work out, or hadn’t slept for weeks and can’t keep my balance.
–Have to rely on high amounts of caffeine to get me through the morning and to get me through my daily schedule of work and school.
–extreme exhaustion, even after full nights of sleep. I have fallen asleep while driving on several occasions.
I am currently diagnosed with fibromyalgia and am on:
150mg of Lyrica, 50mg of Ultram/Tramodol, and 800mg of ibuprophene 3 times a day; as well as 150 - 200mg of Trazodone at night for sleep and depression.
These medications started of much lower and have increased as my systoms have. I have also tried cymbalta, vicodine, ambian, Urtram CR, Soma, Flexeril, and Topamax; along with massage and physical therapy, trigger point injections and chiropractors.
Unlike most cases, I was diagnosed with fibromyalgia fairly quickly. Only after about a year of seeing doctor after doctor. I’ve had blood test, MRIs of my back, and x-rays of my back and hands. Although they have found deterioration of my bones in my hands, and 3 discs in my spine, I been told this shouldn’t be causing this type of pain. All the other test listed came back normal. I feel as if they are disregarding me due to my age, and that the fibromyagia diagnoses was a quick fix.
My questions is, I have heard fibromyagia should only be diagnosed if EVERYTHING else has been ruled out. What other test should my Doctors be running to ensure this isn’t something else. I have done some research and found these following names, but my little country Doctors out here in NC said they haven’t heard of them. Does anyone have any feed back on these:
Arthrography
Discogram
Epidurography
Facet Nerve and Joint Injection
MRI Arthrography
Myelogram
I would also like to add I overdosed on cocaine and alcohol in August of 2004, 6 months prior to these sysmtoms. It was a mistake I made while hanging out with the wrong crowd, and trying to look tough. Have seeked help for this, and do not drink, or do drugs and am very careful about using my medications only as prescribed. I am alway reluctant to tell my Doctors this in fear that they will think I a pill seeker. Could this be useful information for them, or harmful to my treatment? Could this be connected to the cause of these symptoms?
4 Responses
Jono
April 27th, 2009 at 8:09 am
1Go to a Naturopath if you can. Get tested for adrenal fatigue, Epstein Barr and HHV6 and other viruses.Get your vitamin D levels checked. Have your liver tested -the special test where you take a few caffeine pills and you are checked for how your body clears it ( I forget what the test is called but Naturopaths do it.)
Get off of the caffeine. It is probably making things worse. Get off of sugar and be tested for other food allergies. Get some myers cocktails which are IV drips of vitamins.
Fibromyalgia is a general term that doctors use to describe everything else that they don’t know what it is really. Fibromyalgia is a group of symptoms.
Prairie_Girl
April 27th, 2009 at 1:31 pm
2Let me start by saying it’s always important for your doctor to know your medical background, so I do think you need to be open about your past. Only your doctor would know if there is a connection to your present problems or not. Your doctor is there to help you not judge you.
All of the tests you have asked about are very similar. They aren’t new so it’s hard to understand why your doctor has never heard of them.
Arthrography uses a special form of x-ray called fluoroscopy and a contrast material to assess the function of joints, evaluate cartilage, ligament and tendon problems.
MRI Arthrography is basically the same but instead of x-ray an MRI is done.
Discogram is an enhanced CT of the disks in the back using dye to observe structural changes in each disk to determine if it’s causing the pain.
Epiduragraphy is a x-ray visualization of the epidural space.
Facet & nerve injections are a procedure that identifies the source of irritation in the joints of the spine. Steroids are injected which anesthetize the joints and block the pain.
Myelogram uses dye and x-rays or CT to see the nerve roots and spinal cord.
If your medications aren’t helping even though the dose has been increased, then maybe you should consider seeing a doctor in a larger city who has had more experience with this problem. You are much too young to feel like this. Good luck.
justmeinthisworld
April 27th, 2009 at 2:14 pm
3those tests are usually done-
they shoudl test for MS (which may include a spinal test and/or MRI)
blood tests for inflammation/limes/antibodies, etc.
I have had symptoms of fms since I was 5–anyone at any age can get it—-it is a REAL ILLNESS
bassdoc
April 27th, 2009 at 9:46 pm
4Fibromyalgie is a syndrome, not an illness, and there is no way to definitely diagnose it - at the hospital or elsewhere.
It presents with usually (but not always) fatigue, wandering joint pain, stiffness, headache, and exacerbation with stress or overexertion.
There are a lot of things that can also cause these but they usually don’t all present together.
My best way to treat them, because everything on the list gets better except if that person has fibromyalgia. Even it can get substantially better with chiro treatment, massage, stress control, better diet, multivitamin and fish oil, and quitting smoking.
The typical patient is a 30-40-ish woman under stress who smokes.
It can also get started with an illness, or even an accident, and not everybody fits perfectly into this picture.
Best luck - hope it helps.
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