Recently my mother was diagnosed with fibromyalgia and was put on Savelle. She has been on that for 1 month with no improvement at all. We have been doing some research online for other treatments and really the side affects of Lyrica are horrible. We found some information about folic acid and B12, my question is has anyone else with this condition tried the folic acid and B12 OR any other treatments or medications that have helped. She has a very severe case, it is so bad that she cannot get around without help, she cannot that a bath without help and this has been going on for over 3 months straight!!! It is very frustrating! Any information would be helpful, thank you.
3 Responses
Smart_Nurse
October 14th, 2009 at 12:15 pm
1A doctor will not tell you this information so it is important that you read everything you can about it.
For starters — I would suggest you read the following information and explore the possibilities of Low Dose Naltrexone (LDN) which many people with Fibromyalgia / Chronic Fatigue Syndrome , MS, Arthritis, and other pain & autoimmune disorders are finding relief.
Link to e-book about LDN here:
http://honestmedicine.typepad.com/ebook-sept%2021-2009–The%20Faces%20of%20Low%20Dose%20Naltrexone.pdf
sam
October 14th, 2009 at 7:34 pm
2I have 2 different friends who had been diagnosed with fibromyalgia and they were helped by going gluten free. It’s a special diet that cuts out all wheat, rye, and barley. For one it greatly reduced the symptoms, for the other it eliminated them entirely. It is a very strict diet and even the slightest amount of gluten will derail progress, and there’s no guarantees, but it’s worth a shot, and it’s a lot safer and cheaper than medications that mask the symptoms.
justmeinthisworld
October 14th, 2009 at 8:33 pm
3Be aware that fibromylagia is highly overdioagnosed–many of tehse reprots of successful treatments are by people that never really had fobroyalgia
soem were misdiagnosed, some are just flat out lying tryign to make money
B12 and otehr proabbly worked for peopel that had a vitamin deficiency–not rela fms
teh samne with the gluten free diet–they probaly didn’t have real fms–they had a food allergy
i have tried just about everything–i ahven’t bothered with teh newer meds as tehy are very simialr to ones i already tried–
i am near teh point of your mother…
i want to try Xyrem–it is GHB–teh date rape drug–it is the most promising thing–if i could just get quality sleep–i might get better
i had a 2 hour surgery a couple years ago–i felt a lot better after wards–i think it mayhave been the anastetic that allowed my brainto work right…
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