4 Responses

1. cyanne2ak

   December 26th, 2008 at 3:49 am

   1

   quite frankly, physicians don’t know a lot about fibromyalgia. Many still don’t believe it even exists. However, several people are having wonderful luck with physical therapy and massage therapy.

2. Jan

   December 26th, 2008 at 9:31 am

   2

   fibromyalgia is a rhematological disease (same family as rhematoid arthritis, SLE, ect.) but it has no "cause". they can’t diagnose it with blood test or xrays. mostly its the history that gives it away. it has trigger points of pain, both upper and lower body (starting on the scalp, neck, back, legs, ect.). the pain is perceived by the patient but since pain is subjective the physicians tend not to beleive it since there are not signs of it. I beleive that fibromyalgia is a psychological disorder with true physical pain. The patient is not crazy or has less tolerance to pain. the goal of the treatment is to ge tthe patient too sleep better, eat better and live an active life style. she should eat well balanced meals, exercise on a daily basis and get at least 8-10 hours of sleep. medication such as elavil, prozac, lexapro help majority of the patient. a pain management referral should be sougth if your family doctor won’t do anything about it. tell her that its a real disease, its not in her head!

3. cbdamstrom

   December 26th, 2008 at 3:40 pm

   3

   I have had Fibro since I was 16 and am now almost 36. I have seen more doctors over the years than I can count from Neurologists to Rhuematologists to Chiropractors to Psychiatrists to Pain Specialists. In my experience pain medications do not work. A muscle relaxant is much more helpful. I have also tried biofeedback, steroid shots, trigger point injections, two sleep studies, nerve blocks, accupuncture, foot braces, wrist braces, carpal tunnel release surguries, and so much more. All just torture and I felt like a guinea pig.

   My best advise is to get as much rest as she can. Nap if she needs to and sleep when she can. Try delegating some responsibilities to others whether it’s at work or at home.

   Taking a muscle relaxant (I take Zanaflex) is more helpful than pain killers. Have her take a good multiple vitamin, a B Complex supplement (helps in dealing with stress), keep active in at least low impact sports, and consider Magnesium and Malic Acid supplements (consult the doctor or a nutritionist to have her Magnesium level checked- it is a simple mouth swab and not painful), meditation does help some in keeping the pain back if you can seperate your mind from the pain. You may want to learn some home massage techniques for people with Fibro.

   Have her try to take at least 2-3 warm Epson Salt baths a week (Epson salt contains Magnesium and soaking in a warm tub of it helps to get the mineral into the body. Magnesium aids the muscles in using oxygen and when the level is low which is typical in Fibro it can cause are cramps, spasms, and pain.)

   Also, Fibromyalgia is a neurotransmitter disorder and certain foods can trigger similiar symptoms to Fibro. Try eliminating Monsodium Glutamate from herr diet. I did and some of my symptoms (chronic headaches and nausea) went away. It is in everything from Doritos to chicken soup. A few key finding’s of an FDA study found MSG to cause a "burning sensation in the back of the neck, forearms and chest". Otherwise, help her learn herr limits and pace herself.

   The last source below is a study that shows how Fibromites differ from "normal" people in their reaction to pain. I found it very interesting and it helped me verify that this is all real and not just "in my head".

   Good luck!

4. tecuento123

   December 26th, 2008 at 10:56 pm

   4

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