I am already on prescription Celebrex for my fibromyalgia, I have been since I was 20. (I’m nearing 30 now.) I also take Rozerem to try to get a restful sleep, otherwise I am in a vivid dream state all night and never hit deep sleep. Even with the Rozerem when I wake up feeling rested it is a big deal so I get really excited.
I was first diagnosed with fibromyalgia when I was 15. I have been in pain since I was 12 and in 7th grade and constantly fatigued, sometimes with tingling in my hands, feet, and along my spine, what is probably the driest most sensitive skin on earth, always cold (since I had scarlet fever twice when I was 4).
The pain is always there, and I barely notice low-grade pain anymore, the fatigue never, ever leaves. So the pain has been bearable the majority of the time since going on Celebrex, but sometimes I’ll have a flare up that will hurt so bad I’ll just cry and cry but nothing helps it. Usually the flare up only lasts one to four months (at longest). I have bad pain about 25% of the time but don’t consider it a flare up until it has brought me to tears a couple of times and/or I have had to stay home because I hurt too bad and was too tired to leave.
Right now 13 of the 18 pressure points hurt so bad that if I’m in the shower and the spray of water touches one I almost scream, and by nighttime I am wrapping my arms around my knees crying. The pressure points hurt plus every muscle in my entire body. I can feel the muscles across my temples, my neck, all of them in my upper shoulders, my lower back, each tendon in my hand, my wrists, my arms, my legs…even the arches of my feet and my toes can’t stand to be touched. I have tried lightly massaging my feet but it makes me cry to touch it hard enough to feel with my fingers. Even with the Rozerem I can’t sleep because I hurt so bad.
Sitting, standing, or lying nothing seems to help. I’m dizzy all the time lately and in pain. I have a sinus infection but the pain and feelings of fatigue and general health overall are way more than a sinus infection. This is the worst flare up I’ve had since March 2005. I can’t even think straight because I just hurt.
I don’t think that people take me seriously at all because I’m not in this much pain all of the time (thank God!) and I can’t say exactly what caused it by pointing to a specific even, i.e. I was never in a car wreck, or had cancer, ect. I mean I’ve been reading about it some, and I know that it isn’t in my head, but I don’t think that other people understand that.
I have a doctor appointment a week from Monday. I’m going to ask him about going on Cymbalta, I read that it is FDA approved to help anxiety (I have PTSD, and I think that PTSD is under the anxiety category) as well as for fibroymyalgia.
I don’t get to see him though for another week and two days. I have tried four Advil at a time, lots of water, herbal tea, and hot water bottles. I don’t know what to do. It won’t go away and I have no idea how much longer this flare up will last. Even when I do make it to sleep with the Rozerem I will only get about 6 hours of sleep in at most because I wake up every 45 minutes from the pain in my sleep.
I don’t know what to do, and I’m starting to cry again. What else can I do until I get to see that doctor? If he can’t help what do I do? I’m afraid that people won’t believe me but I really am in some God awful pain right now. I know that a lot of people hurt a lot worse, but I do know that I can’t take this pain anymore. I feel like I’m going to implode on myself or something. I can’t stand it because nothing helps any…lying down, sitting, standing, hot shower or bath, four Advil, hot water bottles, water, herbal tea, touch…nothing helps, it seems to get worse daily.
I am a student and don’t have a lot of money (that means no acupuncture–I begged my parents for it in HS). I need really, really need something to help though! I rented a yoga for wimps dvd at the library, but I’m hurting so bad that sitting in my tile floor and stretching sounds so painful. I don’t know what to do!!!
How can I help to ease the pain I’m in right now and how can I make sure that I take control of what happens with the doctor? I’m going to ask him about it because he said that he would put me on a SSRI for the PTSD. I thought that if he did that then I should just ask him to put me on Cymbalta since it does both. I didn’t want to go to my family doctor about getting Cymbalta when the next week he gives me an anti-depressant then I have to make them get together before I even get the right medicine.
I don’t know what to do. I can’t take this anymore!!! How do I ease the pain?
Money isn’t just an issue, at this point it isn’t even an option. I’m a year from graduation but until I graduate college I barely, and some months don’t, have the money to put gas in my car. I have Medicaid, so I can get medicine, but right now I don’t have the money to do anything in the way of alternative medicine. Medicaid just pays for the basics as far as doctors. I think I’m going to make an appointment tomorrow with my regular family doctor, though. Thanks everyone for their advice!
6 Responses
justmeinthisworld
November 4th, 2009 at 6:21 am
1Celebrex is an NSAID–(antiinflammatory)—-there is NO inflammation with FMS–if it is actually helping you—you probably either are misdiagnosed or have a 2nd disease taht causes inflammation
teh Celebrex may only be working on teh 2nd disease-not FMS
FMS is a disorder of teh Central Nervous System—the drugs that help FMS are neuro in nature such as Cymbalta and Lyrica-possibly Tramadol–but you may not be able to take Tramadol with Cymbalta–
I woudl consider tryign another doctor–you don’t seem to be taken seriously by the current one
email
kindness@fibrobetsy.com
she keeps a list of docs recomended by other patients and takes off docs with bad reviews unlike other so called referral lists
bettyboop
November 4th, 2009 at 11:30 am
2Lay down, and concentrate on relaxing your muscles. Try and get into as comfortable a position as you can. Start with your feet, and concentrate on the pain you feel, and in your mind, shrink the pain until you can find the exact spot that the pain actually is, and acknowledge it. And then move up your legs to the next spot, and do the same thing, concentrating each time on relaxing. Do this until the pain has lessened or you fall asleep.
When you can, call the dr. about the appointment you have, and tell him how much pain you are in, and ask if it is possible to get in sooner.
Good Luck
mars2boys
November 4th, 2009 at 12:02 pm
3If you truly have fibro, a rheumatologist will not help. I went to two when seeking a diagnosis, and after testing negative I was sent on my way!
I know you said money is an issue, but with me, I know I will pay just about anything to be pain free. I just started seeing a NUCCA doctor (type of chiropractor) and after two adjustments, I am feeling less pain. It also helped my brother who had similar fibro pain. May be worth at least looking into. It isn’t really too our there as far as mainstream treatments, so insurance may cover it. My six months of treatment is running about $1000 before insurance. So worth it in my opinion. When you are paying for meds every month, that cost too adds up!
crimsonshedemon
November 4th, 2009 at 12:13 pm
4I’m sorry you’re having such a rough time.
Do you see a rheumatologist? A rheumy is the best doctor to treat fibromyalgia. FMS is tricky. Not much is known how/why is attacks but we know that it does. Keep in mind that you can use more than 1 doctor. I see 3 different doctors- all treat different areas.
Cymbalta and Effexor, both SNRIs, have been shown to help with fibromyalgia. I’ve been taking Effexor XR 300mg for the last couple years. It helps with sleep, pain levels, and the depression that can occur with chronic illness.
Not sure how much it helps but it’s part of my overall therapy for lupus and fms.
Most doctors treat with an analgesic (advil, aleve, celebrex, etc)
muscle relaxer (soma, flexeril, skelaxin, etc)
anti-depressant (cymbalta, effexor, elavil, etc)
sleep medication (sonata, ambien, remeron, benedryl, elavil-a tri-cyclic used for sleep)
Some use pain medication (vicodin, morphine, ultram, etc) and anti-seizure drugs (neurontin, tegretol, etc)
Areas that need to be addressed-
pain
sleep
exercise/stress reduction
physical activity
fatigue
I use complimentary medicine also (chiropractic, massage therapy, vitamins/supplments)
Each patient is so different. What works for me, won’t necessarily work for someone else.
Sophiesmom
November 4th, 2009 at 4:42 pm
5You know you have more than 18 pressure point right, but whatever over 1/2 of yours are flaring (FYI you have 22, 11 on each side).
I have had fibro forever myself, i have RSDS and i got the fibro as a secondary thing, mine was from an accident. If you were to look at me you would never know i was in pain 24/7, i do have really bad times once in a while and i go to a room scream and cry and be done with it. Are you getting plenty of exercise? You need to move it or lose it. There is a point were your pain level is great and when your doing something each time you need to go just past that point.
You need to find something to keep your mind off the pain, i have my horse rescue…You have to understand to that those not in chronic pain have no idea what your going through and you can never expect them to understand either. Getting control over this disorder and not letting it rule your life is what needs to be done.
Have you tried soaking in the tub. What i do for flare sites i made rice bags. I took matieral and i made a bag, filled it with rice you have in the house and i put it in the microwave for 2 minutes, and place on the offending site. You can even use a sock…Moist heat seems to work better than your regular heating pad. I have gotten so good at making these bags i even made them so i can walk around with them on and i have made other them to.
The anti depressants may help you, getting on the right one for you is another thing. I dont take them, i take two vicoden in the morning so i can walk and then in the evening when i come in from my horses i take two more, by then the pain is horrindous and thats it, well once in a while i will take a dose mid day, but thats rare. This has help me maintain some normalacy, tho i still hurt it takes the edge off the pain.
If you havent done this ask your doctor to refer you to a pain management clinic, there are all these new things coming out and they may work on you. Good luck and i hope you feel better…
Oh and good sleep LOL whats that??? Im so tired sometimes i dont know how i get anything done.
Spell checker must have died so forgive my bad spelling…blame it on the fibro fog LOL
beemzer
November 4th, 2009 at 7:13 pm
6cymbalta helps me a great deal. i have a major depression. disorder and my pain was constant. i was told over and over again all my symptoms i.e. fatigue,pain,etc were associated with my diagnoses mdd. i later was diagnosed with fibro. in addition to mdd. and what i’ve discovered is cymbalta 120mg each day/ xanex for slediscomfortcomfert/electro stimulation machine (can be purchased) for severe pain in addition GREEN tea (four cups daily) last cup should be taken at least four to six hours before bedtime.
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